Welcome to Funky Cards
Update on Ethan Pinter
As you may recall, we made birthday cards for Ethan as he turned two in November. Ethan was diagnosed with a rare liver disease called Biliary Atresia at the age of 2 months old. Thanks to a liver transplant and the wonderful care he received from his doctors, Ethan celebrated his 2nd birthday in November.
"Hey everyone ...wow where do I start?? My son Ethan was acting terrific for Christmas and then all of a sudden at 4:15 am He started to vomit and all day he was acting lethargic...so I talked to the GI docs in Cincinnati and they told me to take him to Beegleys campus in youngstown...so I did.. His breathing has been really acting up too well... they thought he had traiciamalasia and that is where it is not maturing and it will improve over time(his breathing) and then they were like no he has crupe... so the doc didn't feel comfortable and they decided to life flight me to Akron Children's... That is where I am now and he is in the PICU and they did a CT SCAN and he is showing fluid in his brain, and behind his ears, His left lympnode is also enlarged and same with his tonsils and adnoids.. So the doc ruled out crupe and traiculamaisia bc he was not born with this... So in the back in my mind I have thought that he had PTLD(POST TRANSPLNT LYMPHOMIA DISORDER) and so i asked the doc what I thought and in the mean time he was like (the doc) Ethan's body is in destressed and well they put him on vapotherm to see if that would help and it did not, so they had decided to intebate him..he will be like this till he gets most tests done in cinci... that could be another 48 hrs... (sigh) and then I went to take a shower and came out and the doc stopped me and told me the NEWS... My beautiful baby boy is showing signs of PTLD and that is cancer in his lymphnodes.... So here I am awaiting for the crew to life flight me and ethan to Cincinnati Children's and Then Ethan and I's Journey will start! My daughter will be staying with my mom and my husband will be in Cortland Ohio and will be driving back and forth just like liver transplant... "
If you are so inclined, please pray for Ethan and his family: mom Melissa, dad Chris, and sister Haley. Thank you so much for all the love and support you provide to the families we select for the "I Feel the Love Project."
Thank you for stopping by!
~Madison
Madison,
ReplyDeleteI said a prayer and will continue to keep him in my prayers. Please keep me updated on how Ethan is doing. This is just heart breaking, I've been in this situation and I know how scarey it is as parent. Wanting to know how things are going to go and wanting to carry this burden so that your child doesn't have to.
God Bless
Sherry
My prayers will be going out to the family.
ReplyDeleteThanks for sharing Madison. We'll be praying.
ReplyDeleteHugs,
Nita
Thanks for the update Madison, I will say an extra prayer for Ethan and his family.
ReplyDeleteSending thoughts & prayers for Ethan and his family. Thanks for sharing this with us Madison.
ReplyDeleteHugs, Sheena
This breaks my heart so. I am crying. My thoughts go out to Melissa and Ethan and family. Thanks for the update. Edwina Brown
ReplyDeleteI just had the opportunity to get to know Melissa last month through a swap, she told me about Ethans transplant, I am so heart broken she is going through this right now. I am praying for her, Ethan and family.
ReplyDeleteThanks for sharing with us. I will certainly be praying for him and his family.
ReplyDeleteThanks for the update Madison, I'll add Ethan and his family to my prayer list....
ReplyDeletePraying for Ethan and his family.
ReplyDelete